The Darkness Of the Bearers Of Light

via Daily Prompt: Controversy

Lately the world it’s self has been shrouded in Controversy, be it doping scandals, election rigging, Hacking or dangerous saber rattling in some Asian country, the  custodians of free thinking peoples of the world have lost their way.

They are our leaders both political, community   and religious our bearers of light, freedom and democracy and I feel they have lost their way.

For those of you across the pond we in Ireland recently had our own fair share of Controversy with the discovery of hundreds of infant and babies bodies discovered in a sceptic tank of a baby and mothers home in Co Sligo  in Ireland. A local women had been pursuing the truth for years and had gathered statements from survivor’s and past employees of the home. It is my belief that those responsible at the highest level where aware  of what was happening and turned a blind eye to what was going on. We owe it to ourselves and future generations that all our leaders whoever they may be  held accountable for those who work on their behalf and that they should govern with the most clarity and honesty that democracy demands, for they are our bearers of light too guide us in an ever darkening world.

The Operation

So recently I talked about diagnosis and treatment, but in this post I want to explain how it came to the point where I ended up on the old butcher’s block.

As I explained in an earlier post I had just started a new job as a bus driver and had passed my medical when soon after the symptom’s started to show. Gradually these would eventually grow in both intensity and frequency  which would lead to problems for me with regards to my work.

After  being diagnosed with Crohn’s and several treatments later it was clear to both myself and my doctors that something wasn’t right. To explain what it was like is difficult to put into words but here goes, try to imagine if you will a hose pipe with the water running  unobstructed through it.Now imagine putting your foot gently on the pipe just enough to stop some of the flow of  the water, listen as the water gurgles and splutters trying to flow through the pipe. Now imagine if you will the hose pipe as your intestines trying to push your food waste through that pipe and you will get some idea of the pain I was in at times. Now I’m not trying to come across all serious and intense but people who don’t have the disease don’t understand what it can be like living with Crohn’s.

So eventually after again many test’s and drinking of space alien gloopy stuff, it was discovered that I had quite a blockage in my intestines which had to be removed and then they would rejoin the healthy intestines together. This lead to six months out of work and eventually recovering and getting back to doing my drive’y steer’y  thingy. Ah well you know what they say ‘No Gut’s No Glory’.

 

For God’s sake Jim I’m a Trekkie not a Techie

Hi all thanks for the lovely comments and advice, as I said before this blogging business is all new to me so I’m still finding my way around.

Someone mentioned a widget box appearing at the end of some of my post’s so I will in time figure out how to solve this problem, that said I hope you still enjoy what I’m trying to say in my blog.

The Sceince

Although I don’t want this blog to get too  full of stats and science, here are a few facts for those of you who are not familiar with disease.

Crohn’s disease

From Wikipedia, the free encyclopedia
“Crohn” redirects here. It is not to be confused with Croan, Krone, or Crone.
Crohn’s disease
Synonyms Crohn syndrome, regional enteritis
Patterns of Crohn's Disease.svg
The three most common sites of intestinal involvement in Crohn’s disease are

ileal, ileocolic and colonic.[1]

Classification and external resources
Specialty Gastroenterology
ICD10 K50
ICD9-CM 555
OMIM 266600
DiseasesDB 3178
MedlinePlus 000249
eMedicine med/477 ped/507 radio/197
Patient UK Crohn’s disease
MeSH D003424

Crohn’s disease is a type of inflammatory bowel disease (IBD) that may affect any part of the gastrointestinal tract from mouth to anus.[2] Signs and symptoms often include abdominal pain, diarrhea (which may be bloody if inflammation is severe), fever, and weight loss.[1][2] Other complications may occur outside the gastrointestinal tract and include anemia, skin rashes, arthritis, inflammation of the eye, and feeling tired. The skin rashes may be due to infections as well as pyoderma gangrenosum or erythema nodosum. Bowel obstruction also commonly occurs and those with the disease are at greater risk of bowel cancer.[1]

Crohn’s disease is caused by a combination of environmental, immune and bacterial factors in genetically susceptible individuals.[3][4][5] It results in a chronic inflammatory disorder, in which the body’s immune system attacks the gastrointestinal tract possibly directed at microbial antigens.[4][6] While Crohn’s is an immune related disease, it does not appear to be an autoimmune disease (in that the immune system is not being triggered by the body itself).[7] The exact underlying immune problem is not clear; however, it may be an immunodeficiency state.[6][8][9] About half of the overall risk is related to genetics with more than 70 genes found to be involved.[1][10] Tobacco smokers are two times more likely to develop Crohn’s disease than nonsmokers.[11] It also often begins after gastroenteritis. Diagnosis is based on a number of findings including biopsy and appearance of the bowel wall, medical imaging and description of the disease. Other conditions that can present similarly include irritable bowel syndrome and Behçet’s disease.[1]

There are no medications or surgical procedures that can cure Crohn’s disease. Treatment options help with symptoms, maintain remission, and prevent relapse. In those newly diagnosed, a corticosteroid may be used for a brief period of time to quickly improve the disease with another medication such as either methotrexate or a thiopurine used to prevent recurrence. An important part of treatment is the stopping of smoking among those who do. One in five people with the disease are admitted to hospital each year, and half of those with the disease will require surgery for the disease at some point over a ten-year period. While surgery should be used as little as possible, it is necessary to address some abscesses, certain bowel obstructions, and cancers. Checking for bowel cancer via colonoscopy is recommended every few years, starting eight years after the disease has begun.[1]

Crohn’s disease affects about 3.2 per 1,000 people in Europe and North America.[12] It is less common in Asia and Africa.[13][14] It has historically been more common in the developed world.[15] Rates have, however, been increasing, particularly in the developing world, since the 1970s.[14][15] Inflammatory bowel disease resulted in 35,000 deaths in 2010[16]and those with Crohn’s disease have a slightly reduced life expectancy.[1] It tends to start in the teens and twenties, although it can occur at any age.[1][2] Males and females are equally affected.[2] The disease was named after gastroenterologist Burrill Bernard Crohn, who, in 1932, together with two other colleagues at Mount Sinai Hospital in New York, described a series of patients with inflammation of the terminal ileum of the small intestine, the area most commonly affected by the illness.[17]

here are a few for those of you who might be reading this for the first time and may not be in the know.

So there you have it folks, some of the stats.

Treatment

The drugs,the drugs,the drugs, we all know some of the prescribed drugs for the treatment of crohns and I’ve been on quite a few so much so at times I felt like I was in an episode of ‘Breaking Bad’. The truth is that they don’t all work for everyone as the Verve said ‘The Drugs Don’t Work’ which is what happened to me with some of the treatments that I’ve been on.

Although I can’t remember the names of every drug I’ve tried I do remember two,Buscopan and Deltacortril. Now I want to talk specifically about the Deltacortril, because this really had a major impact on me,my family and my life in general.

First came the cravings like a pregnant lady, then came the puffy face and hands, and lastly the anger, the mood swings, and the depression. To Say it affected me badly is an understatement,it got to the stage where I began to shut myself away from everyone and everything in fact life became quite hairy for a while. It wasn’t until I came off the drug that I returned to some semblance of what for me was normality.

I will at some point talk about what has sort of worked for me, but for now,

I’m Brendan Somers and this has been some of my story.